Rare Disease Legislative Advocates
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Every drug for cancer and other serious life-threatening illnesses that the Abigail Alliance has pushed for earlier access to in our thirteen-year history is now approved by the FDA! There is not one drug that we pushed for earlier access to that did not make it through the clinical trial process. Many lives could have been saved or extended, if there had been earlier access to these drugs! Frank Burroughs, Founder. Review the Patient Choice Act. Support the Patient Choice Act.
What is Alport Syndrome? Hear From the Experts. 5K for Healthy Kidneys a Great Success! The 5K for Healthy Kidneys. Thank you to all the ASF campaigners and donors. Have you seen the latest ASF newsletter? Be sure to register.
Batten Disease Support and Research Association. What Is Batten Disease? Locate a Testing Center. Nuts and Bolts of Care.
Cure AHC Annual Report 2013. Rare Disease Day 2013 Washington DC Lobby Event. CHECK OUT OUR LATEST FUNDRAISERS. To save money and support Cure Ahc Foundation.
Dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We are a science-based advocacy organization that works to bring lifesaving treatments to the 30 million Americans with rare diseases. We focus on educating and activating the patient community to ensure they are heard by policy makers in government and by industry developing the treatments. Affecting 1 in 10 Americans. Have no FDA approved treatments. Sign Up for Our Newsletter.
An informal place to help support people afflicted with FMD. Sunday, October 8, 2017. Dr W Park, Chief of Vascular Surgery at Cleveland Clinic Abu Dhabi.
Then developing and executing strategies that will let your organization set the agenda. We pride ourselves on our ability to problem solve. We unearth solutions to pressing problems, and develop policies that resolve them. We take sound policy concepts and turn them into law on the Federal and State level.
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Kakkis EveryLife Foundation
Julia Jenkins
77 Digital Drive
Novato, California, 94949
US
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Working together to promote rare disease legislationPARSED CONTENT
The domain rareadvocates.org states the following, "In-District Lobby Days August 3rd September 4th! In-District Lobby Days have started! Rare disease advocates across the country are streaming into the offices of their legislators, asking their Congressmen and Congresswomen to support pieces of legislation aimed at helping patients with rare diseases." I observed that the website said " The House of Representatives APPROVES the 21st Century Cures Initiative with a vote of 344-77." They also stated " RDLA applauds the House for approving the 21."SEE OTHER WEBSITES
Are you all about your leads? How to Use Your Artistic Side to Create B2B Leads. Take your pre-call research and value statements one step further create something artistic and send it to your prospects and clients. If you want to get a meeting with an executive, do your pre-call research and send something artistic to an executive to make your point. Artistic research in the form of Origami Flowers.
Welcome to Rare Air Studios! Recently we have undergone a multi-thousand dollar renovation and upgraded our recording space to 2,400 square feet. Feel free to take our virtual tour. And check out all the exciting changes we have made.
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